Monday, June 2, 2008
Today has been busy with paperwork and phone calls and details that need to be in place before Toby can go home. There are a lot of pieces that need to come together but bit by bit they are. The key to getting out of here continues to be Toby's ability to feed. They decided yesterday to let him eat what they call "ad lib" and what I would call "on demand". He is no longer tied to a set schedule and set amounts, though there are still some minimum requirements in both departments. This gives them a pretty good idea of how he would do at home. He is doing ok, but not great. He has yet to nipple feed successfully for an entire day. He did fairly well yesterday but was more fatigued today. So he has to improve quite a bit yet. Still, compared to where he was a week ago, he is doing fantastic. It is difficult to be discouraged when we have seen so many good things happen. We will just have to wait and see if he meets the goal of home this week- praying and trusting God for some more of His perfect timing.
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1 comment:
It was a pleasure meeting Nancy and Tobias. I am very excited to see the progress he will continue to make! Praise GOD!
Jynell (from the DME company!)
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