Tuesday, December 9, 2008

Happy belated 9 month birthday, Toby. It kind of snuck by me on the 6th.

Toby continues to improve. He has not had any spitting up since yesterday morning. Hooray! He is perking up in other ways also and is awake and playing more. He continues to receive iv nutrition to build him back up and also a slow drip of normal feeds. After about a day, they will stop the iv, increase the volume of his nj feedings and consider trying an ng tube again. This peeling back of the layers of intervention that are now in place should help establish the level of help that he needs as well as sort out what problems have been from reflux and what was caused by the virus. It's been difficult to know what was what. The pulmonologists still seem to think he is heading for surgery at some point, though hopefully not during this hospital visit. I am praying that is not necessary, but did have an initial meeting with a surgeon today- strictly for informational purposes.

One point of great encouragement for me: Toby is accepting the bottle again. He drank 1 1/2 ounces yesterday and again today without any apparent discomfort afterwards. Two days ago, I wouldn't have believed it was possible to get back to this point so soon. New mercies each new day.

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