It was back to the pediatrician today after a night in which Toby exercised his lungs and I exercised my legs- walking the floor. He has another ear infection; I am always glad to hear that it is nothing worse.
He did gain a few ounces over the weekend after I put the ng tube back in. He has refused to take any more bottles, though. So it is evident that the ng tube is a deterrent to his eating. This is a vote in favor of at least a g-tube so that he can work on his oral skills.
The attempt to wean Toby off reglan was also informative. After two days of reduced dosage, his vomiting was back and costing him significant amounts of each feeding. He is not able to do without the reglan in his current condition.
So having had a chance to do more reading and review both the big picture and some of the many details, I am satisfied that the plan in place- surgery for both a g-tube and fundoplication on the 30th- is the best choice for now.
Toby is sitting up some, as long as we stand by to catch that precious head when he invariably wobbles over. A weeble he is not. He is also starting to experiment with a few consonants. The proud dada now has a reason to come running; it does sound like he's being called.
Things we are thankful for today:
getting to go out in sunshine (very cheering)
faithful doctors
answers to our prayers for help in making the necessary decisions.
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1 comment:
Nancy--It sounds like you are so strong, what an amazing job you are doing! Tobias is beautiful and we will be praying for him on the 30th. Can't wait for the day he can come to church and play with Anderson and Ellie! Take Care--Sheryl Jacobs
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