Toby's visit to Ann Arbor on Thursday went well. His initial style of g-tube has been replaced with a lower profile "button" with detachable tubing so that he can be free from some extra baggage when he's not using it. We're not enjoying the full benefit yet; he has been doing so much coughing and retching that I try to keep him vented as much as possible.

The nutritionist gave us a plan to try to get a more normal cycle of hunger and meals going. He is spending less time "on the pump" doing continuous feeds and trying more bottles. So far, he is doing great and happy with the change. He also needs to try more foods. Right now, he has an on-again off-again relationship with his cereal. The rhyme and reason of it are not apparent.

Weight was 16 lb 5 oz.
3 days, 3 more ounces- a good pattern for him to be on for catch-up growth.

And last, but certainly not least, his lungs are doing great. They turned off his oxygen for a few minutes and he maintained good sats. That's a definite improvement from past attempts which showed immediate and significant drops. There is some concern over his continued high heart rate. For now, though, the only changes made were some tweaks in medicine dosages to account for his new size.

Toby should get to enjoy another break now from doctor visits. Nothing more is scheduled until the 26th when he is to return to Toledo for evaluations by assorted nurses and therapists. Meanwhile, we will focus on feeding and growing- and enjoying any warm weather that comes our way.