Friday, April 17, 2009

Toby did make it out this past week to services on both Good Friday and Easter morning. (NOT sunrise!) He found the people a bit overwhelming on Friday but by Sunday was adjusting somewhat to the new interactions. The rest of the week has been spent at home. Toby is fighting a slight cold, again. But he is also enjoying spring and seems to be growing stronger. He is still not moving around, but I think the thought is at least starting to cross his mind. He will sit and play for long periods now, but is never more delighted than when he can get others to join him. His feedings continue at about the same level: a bit by mouth and most down the tube. I did stop his last remaining reflux medication and he has not had any problem getting along without it. Hooray! His schedule is a lot simpler now, just morning and evening meds plus breathing treatments 4 times a day. And, of course, he has the 6 feedings. It is so much more manageable than his past regimens and it is exciting to see the progress towards the need for fewer and fewer medical interventions.

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