Friday, June 26, 2009

Yesterday, Toby saw the pulmonologist for a checkup. A lot of good news came out of that visit. They downloaded the data from his O2 monitor plus gave him a trial on room air. Both showed that he is doing significantly better. We are going to try him on a reduced flow with the stated goal (Yes! The doctor said it out loud!) of officially beginning the weaning process at his next visit. He is outgrowing his dosages of diuretics and as long as he continues to do well, they are going to let that process continue until he can come off them completely. Additionally, one of his breathing treatments is being reduced from 3X daily to an "as needed" basis.

Toby officially reached the 20 pound mark, weighing in at 20 lbs 1 ounce. His nutritionist was also quite pleased with his progress. He is going to transition now from fortified breast milk to pediasure and continue to work with the therapist on his oral feedings. This will make life a whole lot easier.

But

These changes are on hold for a few days. Toby showed up for his appointment with a fever and was breathing pretty fast again. A chest x-ray showed "something going on". He started an antibiotic today which hopefully will zap it out.

This minor setback does not diminish the thrill of all the good news. We are happy, happy, happy- and thanking the good Lord for the continued healing he has given Toby.

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