Two more weeks have flown by.
Toby has finally begun to get around a little bit on his own. He's not crawling or walking; when he's sitting on the floor, he wiggles and twists and bounces a bit and manages to move from one spot to another. He is VERY happy not to be stuck in one spot any more.
He was scheduled for physical therapy this week but because of insurance issues was not able to go. He did see the occupational therapist who has been working with him on eating. She was thrilled with the progress he has made towards drinking more and eating a few more foods. He is also on a more normal schedule with three meals and a midnight snack which should help him develop a normal hunger cycle. His therapist continues to feel that the biggest obstacle to getting him to eat more is simply a lack of hunger. His tube feedings are enough that he just doesn't feel the need for more even though we are careful to offer him the real stuff before hooking him up each time. I have contacted his nutritionist to see if she can come up with a plan that will satisfy both the doctors- who want him eating and growing- and the therapist- who wants him hungry and doing more orally.
Last week, Toby received the all clear from the pediatrician for his staph infection and was able to stop the antibiotics. There are a couple spots of hard tissue remaining which we are to watch, along with any other spots, for possible recurrence. They should clear up in a few weeks. However, this week his sister, Caeli, developed two sores on her arm and cultured positive for the same infection. So the household is definitely not in the clear yet and continued vigilance is needed.
He's talking! Toby has added a spoken word to his growing sign language vocabulary. "Hat." He signs it and says it and wants to talk about hats all the time. His dad wears one and his brother and so, we have learned, do a lot of other people we see when we are out and about. Toby himself is NOT wearing his yet, although he has a new bucket hat he likes a bit. Otherwise, hats are for taking off as quickly as possible and for putting on other people's heads.
Two weeks and nothing but good news and normal baby development! How good God continues to be and how thankful we are!
Toby has finally begun to get around a little bit on his own. He's not crawling or walking; when he's sitting on the floor, he wiggles and twists and bounces a bit and manages to move from one spot to another. He is VERY happy not to be stuck in one spot any more.
He was scheduled for physical therapy this week but because of insurance issues was not able to go. He did see the occupational therapist who has been working with him on eating. She was thrilled with the progress he has made towards drinking more and eating a few more foods. He is also on a more normal schedule with three meals and a midnight snack which should help him develop a normal hunger cycle. His therapist continues to feel that the biggest obstacle to getting him to eat more is simply a lack of hunger. His tube feedings are enough that he just doesn't feel the need for more even though we are careful to offer him the real stuff before hooking him up each time. I have contacted his nutritionist to see if she can come up with a plan that will satisfy both the doctors- who want him eating and growing- and the therapist- who wants him hungry and doing more orally.
Last week, Toby received the all clear from the pediatrician for his staph infection and was able to stop the antibiotics. There are a couple spots of hard tissue remaining which we are to watch, along with any other spots, for possible recurrence. They should clear up in a few weeks. However, this week his sister, Caeli, developed two sores on her arm and cultured positive for the same infection. So the household is definitely not in the clear yet and continued vigilance is needed.
He's talking! Toby has added a spoken word to his growing sign language vocabulary. "Hat." He signs it and says it and wants to talk about hats all the time. His dad wears one and his brother and so, we have learned, do a lot of other people we see when we are out and about. Toby himself is NOT wearing his yet, although he has a new bucket hat he likes a bit. Otherwise, hats are for taking off as quickly as possible and for putting on other people's heads.
Two weeks and nothing but good news and normal baby development! How good God continues to be and how thankful we are!
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