And up again!

Toby gained 4 ounces in 8 days so is headed back in the right direction. Good news! The downside is that he is eating less by mouth since the increased volume of feeds leaves him with little appetite. I am hoping to be able to play with the amounts again soon to try to find a balancing point that will enable him to get the nutrition he needs and still have enough appetite to experience a normal hunger cycle sometime during his day. But it looks like a process that can't be rushed. His next weight check is in 2 weeks.

His sats have also continued to improve. His supplemental oxygen level had been bumped up to its previous high level when we hit the latest bump in the road. I have been able to cut that back down the last two nights and he has still maintained near perfect high 90's. All this despite fighting his first cold of the season.

Toby was rewarded for his progress with- as usual- another shot. (Someday he's going to decide he doesn't like that doctor's office.) This was the first of his monthly winter RSV vaccines which are given for 5 or 6 months. This shot cost over $3700 each dose. Yes, that'll be times 5 at least this year. Yet even the insurance company agrees with the doctors that Toby's health is vulnerable enough to make this a good investment. A good reminder to us that winter time is praying time. We get the shots knowing that God is his true protection. "Praise the Lord and pass the ammunition."

His bronchoscopy has been scheduled for the 30th. His pulmonologist has decided it's time she physically examined his lungs and is planning to stick a camera or something down in there and look around. Hmmm.

On the home front, Toby continues to explore to the limit of his "leash" (oxygen tubing). His favorite toys are his blocks. He even has a word for them. You can say it, too. Just clear your throat as loudly as you can.